A glimmer!

Well, Joshua after days and weeks of being at a standstill you have blown us all away by your progress the past few days!  I am so thankful for your progress.  When I was feeling weary and worn the Lord strengthened you and blessed you with great progress and I am so grateful.  It was only a little over a week ago that they extubated you and changed you onto Si-pap.  Slowly but surely you've made your way to C-pap on Wednesday and NOW they are talking about high flow cannula tomorrow!  Dare I say, the light is starting to glimmer at the end of the tunnel again?!  On top of that you are doing AWESOME with your feeds!  Daddy and Mommy have been asking about my breast milk vs. hypoallergenic formula for you and they finally decided to give it a try.  What do you know, it worked!  It always seems like the doctors search and search for something complex and medically wrong.  They put you through all kinds of uncomfortable tests, x-rays, and ultrasounds.  They take painful biopsies and (Praise the Lord) right now your belly issues have been solved by simply changing out the breast milk to formula.  Why don't they try the easy things first?!  That has happened several times now and it is frustrating to Mommy and Daddy especially when we suggest the simple fixes as the most logical fix.  So today the doctor said the progression will be high-flow cannula, work up to full feeds (by mid-week), then start non-nutritive breastfeeding possibly next week, then swap out one feed of formula for milk!  Oh I sure hope that all goes smoothly, but we have an eye exam in there and Daddy and I are concerned about the changes they saw last week and are worried they may say surgery this week.  We are hoping and praying that is not the case.  And I am praying that all the hours of pumping I've put in, the pain and the 10,000+mLs in the freezer are not a waste.  I'm still pumping and still hoping they can figure things out.  We are praying for you bump on your thigh that it would not get any bigger and that you would not get anymore bumps.  They think it may be a lipoma - a fatty tumor.  For now I will try to remain hopeful on all accounts.

Now you have a mobile to look at!

Your face mask-free for a moment!