Sneaky, sneaky...

Well, the plan was for you to get your NG tube out on Monday and see how feedings would go...sink or swim, BUT you were a sneaky little boy and decided to pull it out yourself yesterday!  This is really nothing new, you usually pull out your tube several times a week.  But this time I was holding you and you were so sneaky right in front of my eyes!  I was giving you a break from nursing, just talking to you.  Your hands were by your face, it kind of looked like you were scratching your face.  I could see the NG tube under the tape, but all of a sudden I realized...hey the tube isn't in your nose anymore!  You had gradually pulled it and slid it under the tape.  You were very sneaky!  The NNP decided to leave the NG out and give you the chance to prove yourself a little early.  You have done pretty well, not finishing all your bottles, but finishing at least 70% of each one.  However, tonight you lost a little weight.  They are going to keep a close eye on you to make sure you are eating enough...drink Joshua drink ...we want you to come home.  You don't want that NG tube in again!


Discharge is coming fast and furious.  So many people to talk with, calls to make, oxygen to get set up, forms to fill out, and loose ends to tie up.  And deciding how to set up our house for Joshua...oxygen upstairs or downstairs...why won't insurance just pay for two concentrators?  Ugh...the stress has returned in full force.  I've been looking forward to this time for so long. I'm in disbelief that it is getting so close and I certainly didn't think it would make this mom of four would feel so stressed and anxious about something we've been longing for!